Data sources

The Cancer Registry of Norway contains data on all cases of cancer diagnoses from 1953 to the present day.

The registry contains information on children and adolescents born with cerebral palsy (CP), starting from 1996.

CONOR is a collection of health data and blood samples from several Norwegian health surveys. When the data collection is complete, CONOR will be a unique database with health data and biological samples of about 200 000 individuals. The purpose of CONOR is investigating the causes of disease.

Data from the mass miniature X-ray screening programme for tuberculosis include height and weight (1963-75), along with the assessment of the miniature X-ray for tuberculosis and other conditions (1963-75 and additional periods). Vaccination status (BCG) and response to the Adrenaline-Pirquet (AP) tuberculin tests is also available.

The MBRN contains information from 1967 to the present day about medical conditions during pregnancies, births and newborns in Norway.

Norhealth Statistics (norgeshelsa.no) contains statistics on health, illness, risk factors and population in Norwegian counties. You can create tables and different types of charts.

AblaNor is the Norwegian Ablation and Electrophysiology Registry, established in 2015, with data from 2020. AblaNor is part of the Norwegian Institute of Public Health.

The Norwegian APS registry collects data from hospitalized patients referred to the APS during their hospital stay. These patients normally have difficult pain conditions that don’t respond to standard ward pain care. Patients that fulfill a set of inclusion criteria and give a written consent are included in the registry.

The Norwegian Adverse Drug Reaction Registry, (NorADRR) shall contribute to safe and effective use of medicinal products, by continuously and systematically registering, processing, and analysing reports of suspected adverse drug reactions (ADRs) and capturing information about ADRs as early as possible.

The registry contains information on all persons in Norway who have been registered in or employed by the Armed Forces.

NorArthritis is a national quality registry established to increase knowledge on chronic inflammatory joint diseases in Norway. The registry collects data on patients with chronic inflammatory joint diseases such as rheumatoid arthritis, psoriatic arthritis, and ankylosing spondylitis. Data are collected electronically by the patients and the treating doctors and nurses, and include the following: patient and disease-characteristics, diagnosis, treatment, and outcome in terms of disease activity measures and scores for function and quality of life.

The Norwegian Arthroplasty Register collects data from all hospitals in Norway on all joint arthroplasties since 1987. The overall aim of the register is that all patients shall receive the best possible treatment, using results from the register to identify the performance of different types of prostheses and surgical methods used in Norway. The goal is to identify poorly performing implants and operation methods as early as possible, and to stop the use of these.

The Norwegian Breast Cancer Registry is part of the incidence registry of the Cancer Registry of Norway and contains data on breast cancer dating back to 2009.

The registry contains information on all patients affected by unexpected cardiac arrest in Norway, where cardiopulmonary resuscitation (CPR) is started.

The Norwegian Cause of Death Registry contains information on deaths and causes of death in Norway from 1951 until today. The registry is an important source of information about the state of health and mortality in the population, and about the changes in causes of death over time.

The Norwegian Childhood Cancer Registry is part of the incidence registry of the Cancer Registry of Norway and contains data on cancer diagnoses for children aged 0-17 years dating back to 1985.

The registry contains information about children and adolescents with newly discovered diabetes, and  about the quality of diabetes treatment.

The Norwegian Colorectal Cancer Registry is part of the incidence registry of the Cancer Registry of Norway and contains data on rectal cancer dating back to 1993, and data on colon cancer dating back to 2007.

The registry contains information on bills from health services, which have been reimbursed to patients by the state. Full data are available from 2006.

The Norwegian Counties Public Health Survey (NCPHS) aims to generate knowledge about health and well-being among the adult population in Norway’s counties. The surveys are conducted in collaboration between the Norwegian Institute of Public Health (NIPH) and the county authorities. 

The Norwegian Diabetes Register for Adults is a national medical quality register that contains information about individuals aged 18 and older with type 1 diabetes, type 2 diabetes, or other forms of diabetes.

The registry contains data on patients who undergo an endoscopic examination of the intestinal system through colonoscopy (examination of the colon) or ERCP (examination of the bile ducts and pancreas).

The registry contains information on women who are operated for urinary incontinence.

The Norwegian GP Registry contains an overview of all general practitioners in Norway and the inhabitants on their patient lists since the start of the GP scheme in 2001.

The Norwegian Gynecological Cancer Registry is part of the incidence registry of the Cancer Registry of Norway and contains data on ovarian, fallopian tube, and peritoneal cancer dating back to 2012, and data on cervical cancer dating back to 2019.

The registry contains information on everyone who undergoes endoscopic surgery for gynecological conditions and diseases.

The Norwegian Health Archives Registry is part of the Norwegian Health Archives and consists of deceased patients' archives from the specialist health care services.

In order for patients to be registered, they must have a Norwegian birth number and a diagnosis of heart failure (l500, l501, l509, l110, l130 or l132) that is not due to lung disease.

The Norwegian Hip Fracture Register started recording hip fractures nationwide in 2005. The objective is to detect poor treatment methods and poor-performing implants used in Norway as early as possible, as well as to provide knowledge about epidemiology of hip fractures. The large number of fractures and simultaneous registration of quality of life data (PROM) makes the database unique.

SYSVAK is a national, electronic immunisation registry that records an individual’s vaccination status and vaccination coverage in Norway.

The Norwegian Intensive Care and Pandemic Registry (NIPaR) contains information on all patients treated at intensive care units in Norway, and patients admitted to the specialist health service with infectious disease during epidemics (which include Norway) or pandemics.

The Norwegian Knee Ligament Registry was established in June 2004 to prospectively collect data on all cases of cruciate ligament reconstruction surgery in Norway. From 2017, it also includes non-operative treatment. The purpose of the NKLR is to provide representative and reliable data for future research.

The Norwegian Lung Cancer Registry is part of the incidence registry of the Cancer Registry of Norway and contains data on lung cancer dating back to 2013.

The Norwegian Melanoma Registry is part of the incidence registry of the Cancer Registry of Norway and contains data on melanoma dating back to 2008.

The Norwegian Multiple Sclerosis Registry and Biobank is a quality registry that aims to register all patients with multiple sclerosis (MS) in Norway. Central data are the disease course, and the availability, effect and side effects of treatment that can slow down the development of the disease.

The Norwegian Myocardial Infarction (MI) Registry is a disease-specific medical quality registry organized within the framework of the Norwegian Cardiovascular Disease Registry from 2012.

The Norwegian Neck and Back Registry (NNRR) is a consent-based national medical quality registry that includes patients being assessed at interdisciplinary outpatient clinics in the specialist health services at physical medicine departments in hospitals (as of June 2025, all relevant departments are connected to NNRR). 

The database contains information on all patients admitted to the country's neonatal wards, both sick children born after full-term pregnancy and children born prematurely.

Due to a lack of funding to operate and develop the Norwegian Oesophagus and Stomach Cancer Registry, this is no longer an active clinical registry that is operated as the other clinical registries. Reporting of data to the Cancer Registry of Norway will still be registered, but due to poor reporting, any need for making data available will be assessed against the data quality of the requested variables and what the purpose of the project is, to assess whether data can be delivered.

The Norwegian Paediatric Hip Register started with a nationwide registration of the child hip diseases of hip dysplasia, Legg-Calvé-Perthes disease (LCPD) and slipped capital femoral epiphysis (SCFE) in 2010, and of open and arthroscopic hip surgery (not arthroplasty) in 2013. All hospitals that treat child hip diseases report each treatment and operation to the Paediatric Hip Register.

The Norwegian Pancreatic Cancer Registry is part of the incidence registry of the Cancer Registry of Norway and contains data on pancreatic cancer dating back to 2020.

The Norwegian Patient Registry contains information on everyone who is referred for or has received specialized healthcare at a hospital, outpatients' clinic or from contract specialists.

The Norwegian Porphyria Registry is a consent-based national medical quality registry for patients with porphyria. The registry contains both patient-reported and doctor-reported data, which are registered continuously and prospectively.

Personally identifiable registry with information on medicines dispensed by prescription from pharmacies in Norway from and including 2004. 

The Medicines Register has replaced The Norwegian Prescription Database (NorPD) and it is no longer possible to apply for data from the NorPD. For access to information on medicines that have been dispensed at pharmacies based on prescriptions, see the Norwegian Prescribed Drug Registry.

The Norwegian Prostate Cancer Registry is part of the incidence registry of the Cancer Registry of Norway and contains data on prostate cancer dating back to 2004.

The Norwegian quality register for severe headaches is a national medical quality register for patients with unilateral headache accompanied by autonomic symptoms (TACs).

The aim of the Norwegian Quality Registry for Eating Disorders (NorSpis) is to improve the treatment quality for patients with eating disorders. NorSpis has collected data since 2017. Since 2018, all regional treatment units, where the most severe cases are treated, have registered in NorSpis. NorSpis currently also includes a few treatment units besides regional units, but the registry is still not representative for patients with eating disorders in Norway in general.

The register contains information about patients who have either undergone open surgery or have had closed surgical procedures on the heart and the large vessels close to the heart.

The Norwegian Register for Long-Term Mechanical Ventilation is a national medical quality register for children and adults with long-term mechanical ventilation (LTMV) due to respiration failure. The register was established in 2002 to improve the quality of healthcare.

The registry contains information on patients who are admitted to hospital with chronic obstructive pulmonary disease (COPD).

The registry contains information on both planned and acute surgical procedures on organs in the digestive system (gastrointestinal surgery).

The registry contains information on patients with a genetically determined disease in the muscles (myopathy) or in the peripheral nerves (neuropathy) – with the exception of amyotrophic lateral sclerosis.

ROAS is a national medical quality registry for patients with Addison’s disease and polyendocrine syndromes. It contains demographic and clinical data as well as treatment data (medication type and dosage). Biobank samples are collected for relevant analyses.

The Norwegian Registry for Primary Health Care is a collection of registries with personally identifiable information. It contains information on applicants and recipients of healthcare in Norwegian municipalities.

The Norwegian Registry for Spine Surgery (NORspine) aims at, and is contributing to the improvement of the quality of surgical treatment for degenerative disorders in the cervical and lumbar spine. Patients experience strong and clinically relevant improvements of pain, disability and health-related quality of life after surgery.

The registry registers results after surgical treatment of anal incontinence, preliminarily limited to sacral nerve modulation (SNM) and sphincteroplasty.

The Norwegian Registry of Brain and Spinal Cord Tumours is part of the incidence registry of the Cancer Registry of Norway and contains data on brain and spinal cord tumours dating back to 2022.

Every year, approximately 100 children are born with various types of cleft lip and palate in Norway. Cleft lip and/or palate is one of the most common birth defects in the head and neck region, occurring in approximately 2 out of 1000 live births. The Norwegian Registry of Cleft Lip and Palate collects data from the two cleft teams in Norway, at Oslo University Hospital and Haukeland University Hospital in Bergen. The registry facilitates data collection and data analysis for quality improvement in the two cleft teams.

NORIC is a national medical quality registry that includes patients who undergo invasive coronary procedures and catheter-based treatment of heart valves at hospitals in Norway. This mainly includes procedures such as coronary angiography, percutaneous coronary intervention (PCI), and catheter-based aortic valve implantation (TAVI).

The Norwegian Registry of Lymphoid Malignancies is part of the incidence registry of the Cancer Registry of Norway and contains data on lymphoma and lymphoid leukemia dating back to 2013, and data on myeloma dating back to 2018.

The registry contains information on persons referred to an outpatient clinic in the specialist health service for the assessment of cognitive symptoms and dementia, including data from relatives who consent to this.

The registry contains information on abortions in Norway from 1979 until today.

The registry contains information on patients with severe renal disease.

The Norwegian Sarcoma Registry is part of the incidence registry of the Cancer Registry of Norway and contains data on sarcomas back to 2018.

The Norwegian Spinal Cord Injury Registry (NorSCIR) is a national medical quality registry for spinal cord injury (SCI) care. NorSCIR has been in operation since 2011 and was approved as a national medical quality registry by the Ministry of Health and Care Services in 2012. All SCI patients admitted for primary rehabilitation and later follow-up to one of the three specialized SCI departments are included. The SCI departments are located at Haukeland University Hospital in Bergen, St. Olavs University Hospital in Trondheim, and Sunnaas Rehabilitation Hospital at Nesodden/Oslo. Registration in the registry is voluntary, and written informed consent is obtained before registration occurs.

The Norwegian Stroke Registry is the national quality registry for the treatment of strokes. It is part of the Norwegian Cardiovascular Disease Registry.

The registry contains information from 2005 until today on antibiotic use and healthcare-associated infections in hospitals, outpatient clinics and nursing homes in Norway.

NORM is a Norwegian health registry for monitoring of antibiotic resistance. It contains de-identified patient health information, in addition to information on infecting bacterial and fungal species and their resistance to antibiotics and fungicides.

MSIS contains information about infectious diseases in humans in Norway, from 1977 until today.

RAVN is a Norwegian nationwide surveillance system for antiviral resistance. The registry contains anonymous health information about persons with certain viral infections, information about the viruses and their resistance to antiviral drugs.

The register contains information on patients who have received surgical treatment (tonsillectomy or tonsillotomy) for disease and ailments related to the tonsils.

The registry contains information on all potentially seriously injured patients treated by the specialist health service in Norway, including prehospital services.

The Norwegian Twin Registry (NTR) contains information on around 39,000 Norwegian twins, mainly from the birth cohorts between 1915 and 1991. NTR is consent-based and participation is voluntary.

NORKAR registers all vascular surgical operations performed in Norway. That is, operations on the arteries and collecting veins outside the heart and head.

The registry contains information related to a group of rare diseases that are characterized by inflammation of the blood vessel wall (the term is called vasculitis).

The registry receives data on bariatric surgery in Norway. Data from the registry will be used to improve patient care, and can also be used for science.

Statistics Norway offer various services for extracting microdata and statistics. Statistics Norway data contain information on a number of socio-economic conditions.

The age-40 programme was conducted throughout Norway and focused mainly on cardiovascular diseases and the associated risk factors. The data were collected between 1985 and 1999.

The Cardiovascular Disease Study in Norwegian Counties was carried out in three counties (Finnmark, Sogn og Fjordane, and Oppland), with three visits for longitudinal follow-up between 1974 and 1988.

The postal follow-up study collected new information from previous participants in the cardiovascular studies in the Norwegian counties of Finnmark, Sogn og Fjordane, and Oppland. The follow-up study was conducted in 2006-2008.

Individual-based Statistics for Nursing and Care Services (IPLOS) is a pseudonymous registry with individual encrypted information about applicants and recipients of nursing and care in Norwegian municipalities. Since 2007, this has been the main data source for Norwegian health and care statistics. Since 2017, this information has been included in the Norwegian Registry for Primary Health Care (KPR).

The Norwegian Cardiovascular Disease Registry contains information from 2012 until today about people with diseases of the heart and blood vessels, and about the treatment of these diseases.

The Norwegian Growth Cohort is a population-based health study consisting of data on height and weight from children aged 8 and 13 years. Waist width was also measured on most 8-year-olds.

The Norwegian Mother, Father and Child Cohort Study (MoBa) is a prospective population-based birth cohort. Participants were recruited from all over Norway from 1999 to 2008. The health survey is conducted by the Norwegian Institute of Public Health (NIPH). 

The information from this health study has been used to create an overview of the health of the population in the Norwegian counties of Hedmark and Oppland. The survey was conducted between 2000 and 2001, with similar data collected as in The Oslo Health Study (HUBRO), including local adaptations.

The study was conducted in the city of Oslo from May 2000 to September 2001. HUBRO contains information about the participants' state of health, based on questionnaires and results of a health examination that includes measurements of height, weight and waist circumference, heart rate and blood pressure as well as a blood test.

More than 3,700 people from five different immigrant groups participated in this health study, which was conducted in Oslo in 2002. Both information and biomaterials were collected. The main focus was on diabetes and cardiovascular diseases.

The Oslo Study I was conducted in 1972-1973. The study included the epidemiological aspect of cardiovascular diseases (CVD) among men aged 20-49 years and how CVD could be prevented. The Oslo Study and the succeeding intervention trial are well known through nearly 100 publications.

The Oslo Study II was conducted in 2000. It is a follow-up study of men who had previously participated in The Oslo Study I in 1972/73.

The Romsås in Motion study (MoRo) was conducted from March to May 2003. All individuals 30-67 years of age were invited by letter to the baseline survey. As a control group, an age-matched population-based sample from a similar population in a neighbouring district (Furuset) was used.

The population-based TROFINN Health Study (Troms and Finnmark counties - except Tromsø) was conducted between 2001 and 2003. The objectives of the study were more or less the same as for The Oslo Health Study (HUBRO).

Youth Studies were conducted in six Norwegian counties from 2000 to 2005.